'Hope for Hasti' support by the 1st Battalion

1st Battalion soldiers (Vikings) joined Major Chris Brannigan this week as he marches barefoot across the UK in support of Hope for Hasti.

At the end of Tuesday’s leg Company Sergeant Major Matt Willan presented a cheque for £500 towards Chris’ fundraising efforts.⁠

Chris Brannigan’s daughter, Hasti just turned 8 years old and she dreams of being a chef and a dancer.

Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterized by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births.

Chris is committed to change that so that all children with CdLS, both now and in the future, can enjoy better lives. But to do that, we need your help. We just need £400,000 to pay for the research to create a treatment for this disease.

How can you help?

1. Make a donation if you can, even the smallest donations will make a difference.

2. Share this link via social media with friends and family, make it viral.

3. Like our facebook page – fb.me/HopeforHasti

WHAT WILL YOUR MONEY BE USED FOR?

The project has already started, and the Phase 1 of the project is well underway. The ongoing fundraising will go towards payment of Phase 2 and 3 of the project to create a gene therapy treatment for CdLS. For more information on the research team and the project, you can visit our website: www.hopeforhasti.org

You can help by donating here